Ataxia-telangiectasia is a rare, genetic degenerative disease of childhood, which affects multiple systems of the body. In a letter dated 15/1/2019 this charity wrote: “The A-T Society, as a tiny research funder, does not have a formal policy on human embryo experimentation, as it is something that we have never funded nor been asked to fund, and I find it very difficult to conceive that we would ever be asked to do so.
“In the extremely unlikely event that someone was to approach us with a proposal, we would look long and hard at the scientific and ethical issues and seek guidance from the Association of Medical Research Charities, of which we are a member, and other appropriate organisations.” [#AMRC#]