Ataxia-telangiectasia is a rare genetic degenerative disease of childhood, which affects multiple systems of the body. In a letter dated 21/1/2019 this charity stated: “From a scientific perspective, it is believed that human embryonic stem cell research could offer hope for thousands of people living with complex genetic conditions, but … this type of research is highly contentious. As such, we have not funded any research in this particular area to date and have no plans to do so in the foreseeable future.”